First let me just tell you all that this appointment was 3.5 hours! During this appointment I spent about 2 hours in the ultrasound room looking at each of the triplets, getting measurements on their limbs, stomach, head, how much room they had in their sacs, heart beats etc.
And by the way, they are each in their own sacs. Which is the safest way to carry them YAY. Also, this means they are most likely not identical. But if you’ve seen both Keith and I and know our family, you know we have some strong genes!
With all of the measurements or what the nurses would call the ‘anatomy’ we were able to get a weight on the babies for the first time. Each triplet was growing at the same rate and weighed 7 oz. We quickly was able to tell who was going to be the trouble maker of the bunch! Baby B! She was kicking and throwing her arms everywhere!
A good heart rate would be 120-170, which all three babies were in rage, but baby B’s heart rate has always been the highest until this day every week that we get checked. (Keith thinks they are making a mistake and that Baby B is a boy because she is so active hahaha)
I have told you all they are all 3 girls right?!
After the ultrasounds, I didn’t realize we would be here for another hour and a half talking about all things triplet with the doctor. My mom and Sister joined along with Keith so it was a really tight squeeze but everyone was so anxious to know as much as we could about the triplets! This is a new experience for all of us and I couldn’t have asked for a better support system.
After what felt like an hour of questions, she says that the babies looked great but… (With a pause as she flips through papers);
(which is the last thing you want to hear after that statement, I remember saying uh uh this is never good news)
2 of the babies had a cyst (CPC) aka Choroid Plexus Cyst.
What is CPC?
Choroid plexus cysts are present in 1 to 2 percent of normal fetuses. However, in a very small percentage of fetuses with choroid plexus cysts, there is an associated chromosome disorder called trisomy 18.
Our doctor warned us that in most cases, the cyst would disappear but that it wouldn’t mean that the risk for Trisomy 18 was gone.They would normally be able to test for the extra chromosome by performing an amniocentesis, but because we were having triplets the testing was not offered because they couldn’t be sure which baby the fluids were coming from.
The doctor warned us that if the babies did have trisomy 18 most babies are stillborn and less than 10% wouldn’t live to reach their first birthday. Wow, try to swallow hearing that as a parent. There was some hope because no other abnormalities were detected from the ultrasound and trisomy 18 causes serious physical defects that could be seen, so this was encouraging.
I couldn’t sleep for nights after finding out about two of the triplets have CPC. I would find myself up at 3 and 4am googling what exactly this was and what to expect but nothing can truly rule out this condition for the triplets and we won’t truly know if they have it or not until they are born.
We can only continue to have faith that they don’t.